June  2016

 

The Claire Altman Heine Foundation (CAHF) was formed in 2004 after Claire’s tragic death to implement public health policy to promote pan-ethnic carrier screening for Spinal Muscular Atrophy (SMA).  At the time this was a timely though challenging aspiration, yet thanks in large part to the unwavering support and inspiration of our donors, collaborators in medicine, public health, and industry, we have materially achieved this goal.  Together, we have made a difference and helped thousands of families.

 

While “closing” CAHF is bittersweet, we are proud of CAHF’s role in implementing pan-ethnic carrier screening for Spinal Muscular Atrophy (SMA).  We will continue to support and work to further perfect our cause.

 

Thank you for all your support.

Deborah & Chris Heine

 

For those looking for more information about carrier screening for Spinal Muscular Atrophy, please visit www.acmg.net.